Love

So I did end up buying a Valentine card for Sarah. It has a heart theme with multiple pages that you open with a silly question on each page like “Who is the girl that millions adore? Who is the one that makes my heart soar?” and so forth until you get to the middle… Continue reading Love

Balloons

Tomorrow is Valentines’ Day, which was one of Sarah’s very favorite holidays. It’s hard to say that there was a holiday she did not like celebrating: birthdays most of all (her own, ours, her friends’), V-Day, Hanukkah, Christmas, Halloween, Thanksgiving, Fathers and Mothers Days, and any other holiday for which the grocery stores produced balloons… Continue reading Balloons

Taconic Parkway

It seems to be the symbol of all my guilt and grief at this point. Why? I was not at home when Sarah died. I had gone up to New York City on Tuesday afternoon August 16 to help my Dad, who is 90, tour an independent living facility in Albany. It was so rare… Continue reading Taconic Parkway

I Hope You’re Getting Good Support

This has to be among my least favorite things for people to say to me. There seems to be an implied “But not from me” at the end of it, as if the Venn Diagram of Support offers a large, vast interlocking network of caretakers and caregivers and groups and therapists and so forth keeping… Continue reading I Hope You’re Getting Good Support

Things I Never Wanted To Change

This morning when I got up as usual at a little before 4 a.m. and scanned three or four news websites, I came across an article in the New York Times stating that elite Supreme Court clerks (these are the young lawyers that assist the judges in writing decisions for a year or two, for… Continue reading Things I Never Wanted To Change

Signs

Since Sarah’s death I’ve done a lot of reading on grief and mourning and child loss and death, both “how to” manuals and memoirs written by parents of dead children. There’s a lot of stuff out there. I have read straightforward “What To Expect During The First Year” how-to’s, similar to when I was pregnant… Continue reading Signs

Guilt

Lately it occurs to me that I’ve moved past those early feelings of bewilderment, denial, and shock that were so hard. There was almost an electric shock to my body when I would realize anew that Sarah was dead. As if I were being zapped awake. I had irrational thoughts that she would reappear, that… Continue reading Guilt

Big questions

One of the issues I wrestle with since August 18 is whether I am still a mother. When your only child dies, are you a parent anymore? Max and I not only really, really enjoyed being Sarah’s parents, but because of her progressive and rare medical condition our whole lives basically revolved around her care.… Continue reading Big questions