I am officially started on my second dose of 3 Paxlovid horse pills this morning. Haven’t seen much improvement yet, but hoping by sundown tonight I’ll be a new woman. Or at least some semblance of the old, neurotic but not virus-ridden one. I think it was really good for us to travel, but hard… Continue reading Mrs. de Winter
Tag: death
Montgolfier
We are home from our travels out of the country and I’m back to blogging. I missed having this outlet while I was away and it was nice to get a few comments that some of you would miss my posts too. I may be a bit loopy this morning because it seems I brought… Continue reading Montgolfier
Strawberry Twirl
This week Max and I are leaving for our long-planned (well, since last November) trip to England and Scotland. Tomorrow I may or may not post here, and then the blog will be “on hiatus” as they used to say about poorly-performing television shows in the 1980’s, until about April 1. Try to muddle through… Continue reading Strawberry Twirl
City Place
One of the reasons I feel kind of crazy right now, so I’m told, is that serious grief involves identity re-formation and search for new meaning. Being Sarah’s mom was a huge part of my identity and so I’m basically walking around without an identity and that’s crazy-making. When (if?) I integrate or stumble on… Continue reading City Place
Mangiare
We are definitely fully committed to the HBO show Gomorrah now. One of the things I find fascinating is that the head of the crime family, Don Pietro, is currently in prison and he’s in a communal cell that has maybe 10 men, with bunks for them, and a very large dining table. There’s a… Continue reading Mangiare
Paso Fino
Facebook reminded me this morning that I posted in 2014 about the sudden death of Sarah’s beloved therapy horse, Bo. She had been going to weekly therapeutic riding sessions on Bo, a retired Paso Fino show horse who had been donated to the stable to work with special needs kids. He was a sweet, elderly… Continue reading Paso Fino
Oriental East
Google News let me know today that there is a new mental disorder classified in the DSM-V called “Prolonged Grief Disorder.” Thanks, Google, I needed more things to be anxious about. Criteria are “intense longing for the person who died;” “feeling as though part of oneself has died;” “preoccupation with thoughts of that person” focusing… Continue reading Oriental East
Sleep Safe
I’ve never had any trouble “springing forward” as we call the shift to Daylight Savings Time and usually Sarah didn’t either. She was a very good sleeper for most of her life except when she was a newborn, which was a very hectic period, to say the least. As I’ve said before, she was a… Continue reading Sleep Safe
Resume
Sarah was very jazzed about starting 10th Grade on August 29th. She was in a high school program that would last until she was 21, and that had some academics but also focused on “life skills” like learning how to commute, how to cook some basic meals, and how to use money. Initially, we had… Continue reading Resume
SUDEP
Cure SPG4 has added Sarah to their website with an “In Memory of” overlay, and with some words we wrote about her. If you make it over to the Foundation’s webpage, scroll down to the bottom to the “We Are SPG4” section and swipe through the kid’s little bios. Sarah is kid number 4, all… Continue reading SUDEP
The First Year Without Sarah 