Sarah loved to write stories (and read them) on a website called Tar Heel Shared Reader that supported AAC access and offered eye gaze interface with her speech device for writing. She wrote about two or three dozen books on there with help from her tutor. She also wrote books on Google Slides with her… Continue reading Writing Bug
Tag: Epilepsy
SUDEP
Cure SPG4 has added Sarah to their website with an “In Memory of” overlay, and with some words we wrote about her. If you make it over to the Foundation’s webpage, scroll down to the bottom to the “We Are SPG4” section and swipe through the kid’s little bios. Sarah is kid number 4, all… Continue reading SUDEP
The First Year Without Sarah 