Sarah lost skills gradually and slowly over time. We didn’t really think about the fact that she couldn’t do some things she used to do, it just was something we accepted. For a couple of years she was able to take little steps while wearing her harness for assisted ballet. Then, she couldn’t do it… Continue reading Assisted Ballet
Tag: special needs child
Field Day
Yesterday’s event at Sarah’s school turned out to be a lot of fun with relatively few bad moments. I remembered how to drive to the school despite my fears. When we pulled into the parking lot, “Sarah Smile,” the old song by Hall and Oates, was playing on the 70’s station I usually listen to… Continue reading Field Day
Friendly’s
Today is the first of the triumvirate of social events we have going on in the next few days: my niece’s college graduation, then a quick day trip up to Philly tomorrow to see Max’s brothers, and the field day at Sarah’s school on Tuesday. That’s a lot for us. I’m a little wrought up,… Continue reading Friendly’s
Bandana
Yesterday contained a surprise. A few months ago we approached Sarah’s school about arranging some sort of tribute for her there — a buddy bench, or a piece of equipment her classroom needed, or something else that they thought was best. They said they would let us know, and we didn’t hear back, but figured… Continue reading Bandana
Pep Talk
Today seems less fraught with sadness and angst than yesterday, but I’m still feeling down and kind of over-sensitive. Generally, I do not like the term over-sensitive. People are as sensitive as they are and if they feel especially sensitive, that’s life. It’s like the Doctrine of the Eggshell Plaintiff that you learn in your… Continue reading Pep Talk
Ferry Boat
I’m feeling really fried today and I actually did not feel like writing. Tomorrow is the 18th and it will be nine months since Sarah died. I’m not feeling like it’s any easier. I actually feel like I’m more prone to bouts of tears and craziness. I get pumped up and smiley and almost giddy… Continue reading Ferry Boat
Mall About Town
It’s turning into a busy upcoming weekend. On Sunday we will drive up to Philly to visit with Max’s brothers, and probably drive back the same day. Saturday is my niece’s college graduation ceremony here in DC and my brother phoned last night to invite us to come. (They tend to plan things at the… Continue reading Mall About Town
Ethan
Next week we are going up to Philadelphia to Max’s family home where two of his older brothers still live because his oldest brother, Jeff, is coming in from Michigan for a visit. I think I have mentioned before that Jeff is 21 years older than Max and was leaving home for graduate school when… Continue reading Ethan
Grass Experience
For many years our aross-the-back-fence neighbors were an older retired couple called Margaret and Frank. They were nice for the most part except that Margaret was obsessed with gardening and weeding her back yard and with the possibility of contamination from weeds or “trash trees” in our yard. We are not gardeners but we do… Continue reading Grass Experience
Freecycling
Yesterday when Polly the Beagle and I were out for our morning walk, I saw that a neighbor was freecycling a little blue chair for a child. For a moment or two I thought something like “Good back support, nice deep tush, and armrests. Sarah could do well sitting up in that.” Which was silly… Continue reading Freecycling
The First Year Without Sarah 