Yesterday’s event at Sarah’s school turned out to be a lot of fun with relatively few bad moments. I remembered how to drive to the school despite my fears. When we pulled into the parking lot, “Sarah Smile,” the old song by Hall and Oates, was playing on the 70’s station I usually listen to… Continue reading Field Day
Tag: special needs dad
Mall About Town
It’s turning into a busy upcoming weekend. On Sunday we will drive up to Philly to visit with Max’s brothers, and probably drive back the same day. Saturday is my niece’s college graduation ceremony here in DC and my brother phoned last night to invite us to come. (They tend to plan things at the… Continue reading Mall About Town
Freecycling
Yesterday when Polly the Beagle and I were out for our morning walk, I saw that a neighbor was freecycling a little blue chair for a child. For a moment or two I thought something like “Good back support, nice deep tush, and armrests. Sarah could do well sitting up in that.” Which was silly… Continue reading Freecycling
The Ferryman
I loved logic puzzles and games when I was growing up. I liked to figure out how to get everyone from one side of the river bank to the other safely, or which of five friends must have been wearing the purple hat and red shoes, and so forth. I especially liked when there was… Continue reading The Ferryman
We Speak PODD
I’m determined to test negative today for COVID so I can go out grocery shopping and get stuff together for Passover. Which really disgusts me because I actually can’t stand those “mind over matter” memes and tropes about illness and disability. For example, there has been a lot of garbage lately about Jeremy Renner’s snowplow… Continue reading We Speak PODD
March Madness
Max is now positive for Covid too and we are embunkered (is that even a word?) together at home for the duration. He came up positive when I swabbed him yesterday but didn’t seem particularly ill except for body aches. So he’s a few days behind me Covid-wise. I crashed spectacularly around 9 a.m. yesterday… Continue reading March Madness
Mangiare
We are definitely fully committed to the HBO show Gomorrah now. One of the things I find fascinating is that the head of the crime family, Don Pietro, is currently in prison and he’s in a communal cell that has maybe 10 men, with bunks for them, and a very large dining table. There’s a… Continue reading Mangiare
Gumdrop Tree
Yesterday turned into a bit of a weepy sad mess. I started looking at photos of Sarah on my phone, the most recent ones, and thinking ‘This one was 19 days before she died.’ ‘This one was four months and eleven days before she died.’ Did she look as if she was detaching from us?… Continue reading Gumdrop Tree
Breaking Up
From the time Sarah was a toddler, she would get fixated on particular movies or television shows and then all of a sudden she would have enough and she never wanted to see them again. When she was really little, she loved the movie Babies, which is about four little ones from different parts of… Continue reading Breaking Up
Spirit Week
I was going to start writing this morning about Rare Disease Day, which falls on February 28, and harangue you about its meaning and importance. Yes, close call for you guys. Instead, Facebook’s “Memories” feature dragged up a post of mine from 2016 that grabbed my attention and even got me laughing a little bit.… Continue reading Spirit Week
The First Year Without Sarah 