Max is now positive for Covid too and we are embunkered (is that even a word?) together at home for the duration. He came up positive when I swabbed him yesterday but didn’t seem particularly ill except for body aches. So he’s a few days behind me Covid-wise. I crashed spectacularly around 9 a.m. yesterday… Continue reading March Madness
Tag: special needs mom
Strawberry Twirl
This week Max and I are leaving for our long-planned (well, since last November) trip to England and Scotland. Tomorrow I may or may not post here, and then the blog will be “on hiatus” as they used to say about poorly-performing television shows in the 1980’s, until about April 1. Try to muddle through… Continue reading Strawberry Twirl
Mangiare
We are definitely fully committed to the HBO show Gomorrah now. One of the things I find fascinating is that the head of the crime family, Don Pietro, is currently in prison and he’s in a communal cell that has maybe 10 men, with bunks for them, and a very large dining table. There’s a… Continue reading Mangiare
Resume
Sarah was very jazzed about starting 10th Grade on August 29th. She was in a high school program that would last until she was 21, and that had some academics but also focused on “life skills” like learning how to commute, how to cook some basic meals, and how to use money. Initially, we had… Continue reading Resume
Madame Tootsie Bagel
One of my mom’s nicknames for me was Madame Tootsie Bagel, and I started calling Sarah that too, and so did Max. It seemed to suit her combination of cuteness, joy, and a little sass. I always assumed Mom got this name from old radio programs of the 1930s or 40s, or from vaudeville, where… Continue reading Madame Tootsie Bagel
Gumdrop Tree
Yesterday turned into a bit of a weepy sad mess. I started looking at photos of Sarah on my phone, the most recent ones, and thinking ‘This one was 19 days before she died.’ ‘This one was four months and eleven days before she died.’ Did she look as if she was detaching from us?… Continue reading Gumdrop Tree
Breaking Up
From the time Sarah was a toddler, she would get fixated on particular movies or television shows and then all of a sudden she would have enough and she never wanted to see them again. When she was really little, she loved the movie Babies, which is about four little ones from different parts of… Continue reading Breaking Up
Spirit Week
I was going to start writing this morning about Rare Disease Day, which falls on February 28, and harangue you about its meaning and importance. Yes, close call for you guys. Instead, Facebook’s “Memories” feature dragged up a post of mine from 2016 that grabbed my attention and even got me laughing a little bit.… Continue reading Spirit Week
Self Care
This week I was at the dentist getting a dental crown replaced, and she discovered a small cavity underneath the crown when she took it off. “I can just remove that small cavity right now,” she said reassuringly. (Dr. Ramdath at The Smile Atelier is a terrific dentist if you are in need, by the… Continue reading Self Care
Trips
One week from today will be March 1. February has been a hard month in so many ways and I do want it to pass away. And in March, Max and I will take a trip to the UK. We haven’t really traveled other than long weekends at the Jersey Shore, our Wish Trip in… Continue reading Trips
The First Year Without Sarah 