Tag: special needs parent

The Ferryman

I loved logic puzzles and games when I was growing up. I liked to figure out how to get everyone from one side of the river bank to the other safely, or which of five friends must have been wearing the purple hat and red shoes, and so forth. I especially liked when there was… Continue reading The Ferryman

We Speak PODD

I’m determined to test negative today for COVID so I can go out grocery shopping and get stuff together for Passover. Which really disgusts me because I actually can’t stand those “mind over matter” memes and tropes about illness and disability. For example, there has been a lot of garbage lately about Jeremy Renner’s snowplow… Continue reading We Speak PODD

Mangiare

We are definitely fully committed to the HBO show Gomorrah now. One of the things I find fascinating is that the head of the crime family, Don Pietro, is currently in prison and he’s in a communal cell that has maybe 10 men, with bunks for them, and a very large dining table. There’s a… Continue reading Mangiare

Spirit Week

I was going to start writing this morning about Rare Disease Day, which falls on February 28, and harangue you about its meaning and importance. Yes, close call for you guys. Instead, Facebook’s “Memories” feature dragged up a post of mine from 2016 that grabbed my attention and even got me laughing a little bit.… Continue reading Spirit Week

Maladaptive Behavior

This morning Google News sent me a Psychology Today article letting me know that there are 3 Ways My Personality Might Be Secretly Harming Me. (Only 3?) It seems, according to Mark Travers, Ph.D., that we all need to “check in” with ourselves regularly to avoid slipping into maladaptive behavioral patterns, although Mark does not… Continue reading Maladaptive Behavior

Childless

This is Presidents Day weekend, Sarah’s birthday weekend. We are planning to go out to dinner on Sunday with Sarah’s tutor, who we were all close to, but have vague “we’ll do something” plans for Monday. Perhaps I will get a pedicure with purple or pink polish. This morning I read a BBC News article… Continue reading Childless

Untitled

These last few days my usual emotional repertoire since August 18 of guilt, depression, angst, and constant tearfulness seems different. A couple of nights ago, I woke up from a dream screaming. I remember that someone was trying to steal the new car I bought in place of our wheelchair van, and leave me three… Continue reading Untitled

Love

So I did end up buying a Valentine card for Sarah. It has a heart theme with multiple pages that you open with a silly question on each page like “Who is the girl that millions adore? Who is the one that makes my heart soar?” and so forth until you get to the middle… Continue reading Love

I Hope You’re Getting Good Support

This has to be among my least favorite things for people to say to me. There seems to be an implied “But not from me” at the end of it, as if the Venn Diagram of Support offers a large, vast interlocking network of caretakers and caregivers and groups and therapists and so forth keeping… Continue reading I Hope You’re Getting Good Support

Things I Never Wanted To Change

This morning when I got up as usual at a little before 4 a.m. and scanned three or four news websites, I came across an article in the New York Times stating that elite Supreme Court clerks (these are the young lawyers that assist the judges in writing decisions for a year or two, for… Continue reading Things I Never Wanted To Change