Wishbone

The Wall Street Journal said today that prison inmates are looking forward to meeting Elizabeth Holmes (the convicted founder of Theranos) and have said “I want to be her friend.” Well, I’m glad that Elizabeth, or Liz as she goes by now (I think), is going to have a support system in prison and that… Continue reading Wishbone

Tootsie Rolls

Yesterday and this morning I’ve been feeling pretty depressed and tearful, and I did quite a lot of crying thinking about missing Sarah. I walked up to our little downtown shopping area at lunchtime yesterday and looked for a bathrobe and a few other things, and just realized I felt very down. I was flipping… Continue reading Tootsie Rolls

Slide Show

HBO Max rebranded itself into Max some time in the last few days and for some reason we can’t get the app to work on our streaming system anymore. We can open it and get a few frames of a show, like a slide show almost, and then a message comes up saying there’s a… Continue reading Slide Show

Assisted Ballet

Sarah lost skills gradually and slowly over time. We didn’t really think about the fact that she couldn’t do some things she used to do, it just was something we accepted. For a couple of years she was able to take little steps while wearing her harness for assisted ballet. Then, she couldn’t do it… Continue reading Assisted Ballet

Field Day

Yesterday’s event at Sarah’s school turned out to be a lot of fun with relatively few bad moments. I remembered how to drive to the school despite my fears. When we pulled into the parking lot, “Sarah Smile,” the old song by Hall and Oates, was playing on the 70’s station I usually listen to… Continue reading Field Day

Friendly’s

Today is the first of the triumvirate of social events we have going on in the next few days: my niece’s college graduation, then a quick day trip up to Philly tomorrow to see Max’s brothers, and the field day at Sarah’s school on Tuesday. That’s a lot for us. I’m a little wrought up,… Continue reading Friendly’s

Bandana

Yesterday contained a surprise. A few months ago we approached Sarah’s school about arranging some sort of tribute for her there — a buddy bench, or a piece of equipment her classroom needed, or something else that they thought was best. They said they would let us know, and we didn’t hear back, but figured… Continue reading Bandana

Pep Talk

Today seems less fraught with sadness and angst than yesterday, but I’m still feeling down and kind of over-sensitive. Generally, I do not like the term over-sensitive. People are as sensitive as they are and if they feel especially sensitive, that’s life. It’s like the Doctrine of the Eggshell Plaintiff that you learn in your… Continue reading Pep Talk