Tag: sudden death

Resume

Sarah was very jazzed about starting 10th Grade on August 29th. She was in a high school program that would last until she was 21, and that had some academics but also focused on “life skills” like learning how to commute, how to cook some basic meals, and how to use money. Initially, we had… Continue reading Resume

SUDEP

Cure SPG4 has added Sarah to their website with an “In Memory of” overlay, and with some words we wrote about her. If you make it over to the Foundation’s webpage, scroll down to the bottom to the “We Are SPG4” section and swipe through the kid’s little bios. Sarah is kid number 4, all… Continue reading SUDEP

Breaking Up

From the time Sarah was a toddler, she would get fixated on particular movies or television shows and then all of a sudden she would have enough and she never wanted to see them again. When she was really little, she loved the movie Babies, which is about four little ones from different parts of… Continue reading Breaking Up

Losing a child

This morning while cruising through Facebook I saw one of those “harried mom” memes in which the mom said she must be doing okay because she hadn’t lost any of her children or pets today. I get that. Losing your kid in an airport, or mall, or parking lot is really horrible. I never exactly… Continue reading Losing a child

Legacies

We were never expecting Sarah would marry or have children (although she definitely had a way of surprising us) but now that she’s gone, our line ends here. There are multiple grandchildren and even great-grandchildren on both sides of our family so it’s not as if our families will stop existing. Max and I are… Continue reading Legacies

Trips

One week from today will be March 1. February has been a hard month in so many ways and I do want it to pass away. And in March, Max and I will take a trip to the UK. We haven’t really traveled other than long weekends at the Jersey Shore, our Wish Trip in… Continue reading Trips

Maladaptive Behavior

This morning Google News sent me a Psychology Today article letting me know that there are 3 Ways My Personality Might Be Secretly Harming Me. (Only 3?) It seems, according to Mark Travers, Ph.D., that we all need to “check in” with ourselves regularly to avoid slipping into maladaptive behavioral patterns, although Mark does not… Continue reading Maladaptive Behavior

Where is Sarah?

This morning I woke very early from a dream in which I think I was hunting for Sarah but happened upon my mother, who also died recently. I wanted information from Mom on Sarah’s whereabouts, but she began a long spiel about her medical problems, which is what usually happened when you talked to her… Continue reading Where is Sarah?

Childless

This is Presidents Day weekend, Sarah’s birthday weekend. We are planning to go out to dinner on Sunday with Sarah’s tutor, who we were all close to, but have vague “we’ll do something” plans for Monday. Perhaps I will get a pedicure with purple or pink polish. This morning I read a BBC News article… Continue reading Childless

Untitled

These last few days my usual emotional repertoire since August 18 of guilt, depression, angst, and constant tearfulness seems different. A couple of nights ago, I woke up from a dream screaming. I remember that someone was trying to steal the new car I bought in place of our wheelchair van, and leave me three… Continue reading Untitled