Last night I dreamed that I was teaching a small class of middle schoolers or high schoolers some sort of elective. I hadn’t really prepared a curriculum and was sort of BS-ing my way through the lesson, which consisted of walking around our neighborhood park and pointing out various conifers and their rate of growth.… Continue reading Holidays
Tag: SUDEP
Higher Power
Today we may or may not go to a Memorial Day Barbecue put on by Max’s AA group that will be held prior to their meeting. It depends on the weather and how I’m feeling. I guess if I go to the BBQ I’ll probably end up staying for the AA meeting too. I’ve been… Continue reading Higher Power
Wishbone
The Wall Street Journal said today that prison inmates are looking forward to meeting Elizabeth Holmes (the convicted founder of Theranos) and have said “I want to be her friend.” Well, I’m glad that Elizabeth, or Liz as she goes by now (I think), is going to have a support system in prison and that… Continue reading Wishbone
Tootsie Rolls
Yesterday and this morning I’ve been feeling pretty depressed and tearful, and I did quite a lot of crying thinking about missing Sarah. I walked up to our little downtown shopping area at lunchtime yesterday and looked for a bathrobe and a few other things, and just realized I felt very down. I was flipping… Continue reading Tootsie Rolls
Slide Show
HBO Max rebranded itself into Max some time in the last few days and for some reason we can’t get the app to work on our streaming system anymore. We can open it and get a few frames of a show, like a slide show almost, and then a message comes up saying there’s a… Continue reading Slide Show
Assisted Ballet
Sarah lost skills gradually and slowly over time. We didn’t really think about the fact that she couldn’t do some things she used to do, it just was something we accepted. For a couple of years she was able to take little steps while wearing her harness for assisted ballet. Then, she couldn’t do it… Continue reading Assisted Ballet
Field Day
Yesterday’s event at Sarah’s school turned out to be a lot of fun with relatively few bad moments. I remembered how to drive to the school despite my fears. When we pulled into the parking lot, “Sarah Smile,” the old song by Hall and Oates, was playing on the 70’s station I usually listen to… Continue reading Field Day
Friendly’s
Today is the first of the triumvirate of social events we have going on in the next few days: my niece’s college graduation, then a quick day trip up to Philly tomorrow to see Max’s brothers, and the field day at Sarah’s school on Tuesday. That’s a lot for us. I’m a little wrought up,… Continue reading Friendly’s
Bandana
Yesterday contained a surprise. A few months ago we approached Sarah’s school about arranging some sort of tribute for her there — a buddy bench, or a piece of equipment her classroom needed, or something else that they thought was best. They said they would let us know, and we didn’t hear back, but figured… Continue reading Bandana
Pep Talk
Today seems less fraught with sadness and angst than yesterday, but I’m still feeling down and kind of over-sensitive. Generally, I do not like the term over-sensitive. People are as sensitive as they are and if they feel especially sensitive, that’s life. It’s like the Doctrine of the Eggshell Plaintiff that you learn in your… Continue reading Pep Talk
The First Year Without Sarah 